As a metastatic breast cancer patient who was originally diagnosed stage II I will not be counted by the SEER program of the National Cancer Institute (the primary source of information on cancer incidence and survival in the United States) until I die from the disease. This is a major problem for the metastatic breast cancer community because if we are not counted, do we still matter? How can we expect to have adequate attention and funding directed to the needs of the metastatic patient for support, treatment and research, if we lack fundamental statistics like incidence and prevalence?
I’m starting this blog as a way to keep loved ones informed as I battle breast cancer. However, breast cancer is just a part of my life. It doesn’t get to define me or take over my whole life. If I have to talk all breast cancer all the time, I’ll be going from MD Anderson to Menninger Clinic faster than the speed of light! So, walk with me on this journey, cry with me sometimes, but please, please, please for the love of all things holy, enjoy the silly with me, celebrate the excellent, and focus on the positive!